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snoepeke
Registered: 09/12/07
Posts: 26

    05/17/09 at 02:58 PM
#1

I am 41, knows for 7 years that I have cadasil and just had my second stroke!  May I ask others how old they are and how many strokes they already had? I am scared now, and was given aggrenox instead of asperine!
Love Sylvia from belgium


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I have cadasil since 2002
Cory
Registered: 09/09/08
Posts: 8

    06/07/09 at 12:27 PM
#2

I had my first stoke when I was 37.  It has been a year and a half since then without any stroke.

My father had dozens in his life pretty much one every year from his mid 30s until he passed at 60.
Bowdoin44
Registered: 03/09/09
Posts: 8

    06/15/09 at 06:56 AM
#3

I am 46.  I started having small TIA's about 5 years ago.  I had my first stroke with severe migraine last year.  Am taking aspirin and Aricept for the CADASIL.  I was not diagnosed until after I had the stroke in 2008.  They thought before that that I had MS until they did the genetic testing.


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Beth King
Bowdoin44
Registered: 03/09/09
Posts: 8

    07/16/09 at 06:26 AM
#4

Just dropping in to update everyone.  I am 46 and have know that I have CADASIL for a little over a year.  I first had a few TIA's.  The doctors thought I probably had MS but the spinal tap came out negative.  4 years later in 2008 I had my first stroke with a 5 day migraine.  They then tested for CADASIL.  After I found out that it was positive we had my father tested, he had been in a nursing home after having several strokes and dementia.  His test also came out positive.  He has since then passed away on June 27,2009 at the age of 71.  At his funeral I was talking to his sisters son and found out that his mother (at the age of 51) died of a stroke.  My grandmother also died when she was 62, and the cause of death was listed as MS.  It's all very upsetting when I think about what's going to happen to me.  I think that I have had 2 TIA's since my stroke last year.  I keep waiting for the other shoe to drop.  It was really hard to watch my father going downhill for so long and thinking that I'm going to end up the same way.  I know that he's in a better place now but that still doesn't help sometimes.  I miss him very much!!  What is in the future for me??  Am trying to get SS but they don't seem to understand what CADASIL is and what it does to your life.  Just wanted to talk to someone who understands what I'm going through because noone else seems to understand!  Thanks for listening!!

Beth 46 and scared in Maine

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Beth King
real
Registered: 09/06/07
Posts: 17

    07/25/09 at 11:37 AM
#5

Well, I am 46 no strokes yet- found out i had cadasil four years ago- dna test. Been taking cardio support 1- scoop every night, 81mg asprin- switching to the new Bayer asprin that lowers cholesterol, Omega 3-6-9, puritans pride formula 100. My dad had first stroke at age 47- so I will keep everyone posted.
Real
jomart005
Registered: 07/02/08
Posts: 7

    09/16/09 at 09:12 PM
#6

The Stratagy

 

New ways of testing; In the New England Medical Journal a new way of testing for Cadasil has been found. No longer will people have to have their blood drawn. A simple swabing of ones mouth or collecting of siliva for DNA sampling can give the same results that blood screening can give with the same accuracy.

 

In the Readers Digest issue for November 2008, page 96. A dose of Cocoa; Eating and drinking foods high in cocoa flavanols inproves blood flow to the brain and may help prevent strokes and demntia. In a study of 34 adults ages 59 to 83, scientists from Harvrd Medical School and Brigham and Womens Hospitals found that those given a flavanol rich drinks twice a day for one to two weeks had a significant increase in brain flow. The compounds may help the brain relax, improving circulation, while there are labeling standards for flavanol yet, food companies are marketing 'Healthier" choices in dark chocolate and cocoa. A small bit couldn't hurt, and may just help.   

 

In the Readers Digest isssue for December 2008, page 96. A University of Kansas study found that patients who were fit had four times less brain shrinkage (meaning cell death)than those who were out of shape. The benifits of exersize, including changes in  growth factors and incressed blood vessels and blood flow, may prevent  brain cells from dying. 

 

Sign: You eat purple food
Concord grapes, blueberries, red wine: They all get that deep, rich color from polyphenols—compounds that reduce heart disease risk and may also protect against Alzheimer's disease, according to the new research. Polyphenols help keep blood vessels and arteries flexible and healthy. "What's good for your coronary arteries is also good for your brain's blood vessels," says Robert Krikorian, Ph.D., director of the Cognitive Disorders Center at the University of Cincinnati. Preliminary animal studies suggest that adding dark grapes to your diet may improve brain function. What's more, in a recent human study, researchers found that eating one or more cups of blueberries every day may improve communication between brain cells, enhancing your memory.

Tea up" to stop strokes

Drinkng lots of black or green tea may lower your risk of stroke, according to the research presented at the American Stroke Association's International Stroke Conference in San Diego, California., earlier this year. Experts say antioxidents and other substances in these teas appear to reverse the prcess of strokes, and help ward off strokes. A study review of 195,000 adults found that people who drank 3 or more cups of tea daily had a 21% lower risk of strokes compared to people who drank one cup or less. 

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