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Stephanie
Registered: 07/23/09
Posts: 6

    07/23/09 at 05:29 PM
#1

Hi, I am new. I have not been formerly diagnosed yet, but I had an MRI done and looks very much like I have the disease. Many members of my extended family have already been diagnosed. I cannot afford to get the test right now but can anyone give me any idea of what I could be doing to help myself? I am 25 and I am very scared.
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Stephanie
Byds
Moderator
Registered: 08/26/07
Posts: 21

    08/03/09 at 03:31 PM
#2

Stephanie, You cannot diagnose CADASIL with a MRI as it is not accurate at all.  The only way you know if you have CADASIL is a blood test for biospy.



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Billie
Stephanie
Registered: 07/23/09
Posts: 6

    08/03/09 at 03:48 PM
#3

I know that I cannot be diagnosed with an MRI only. But I guess I am kind of like, what else could it be. My grandfather died from it, and my mom, aunt and uncle all have been formally diagnosed with it. I am actually not as scared now as I was. I am ok if I have it and if it turns out I don't, well that will be a bonus. Thanks so much for putting this thing together.


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Stephanie
kafagan55
Registered: 12/04/07
Posts: 6

    09/14/09 at 02:46 PM
#4

an mri scan is fairly accurate for diagnosis. dont worry too much i am 51 with cadasil i have had headaches but no serious complacations so far thank god.keep positive life is for living
                                god bless
                                    kevin

A MRI cannot diagnose CADASIL.  A blood test or skin biospy is the only way to confirm CADASIL.   MRI's can show white matter but there are several other diseases which also can be diagnosed with a MRI.

kafagan55
Registered: 12/04/07
Posts: 6

    09/14/09 at 02:51 PM
#5

get your doctor to put you on nu-seal asperin get your cholerestral checked keep healthy
          kevin
Stephanie
Registered: 07/23/09
Posts: 6

    09/16/09 at 10:15 PM
#6

Thanks. I am staying healthy. My cholesterol is fine and I am being as proactive as is possible with this. Can't get officially diagnosed yet though because I am between insurance. Too bad health insurance is only for those who don't need it. 
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Stephanie
jomart005
Registered: 07/02/08
Posts: 7

    09/16/09 at 11:37 PM
#7

Just try to stay positive. I know how scary this is when you suspect you have it. But remember, breakthroughs in stem-cell research happen all the time. However, in the mean time, take care of yourself. Take an aspirin a day. Eat healthy, try meditation and yoga. Try L-Arginie supplements. You can get them at any vitamin supplement food store. Try music and art, they are good for creativity for motor skills and brain activity. Plus music is so relaxing. Acupuncture and acupressure or massages help blood flow.
 
Ask you Dr. about a new ways of testing; In the New England Medical Journal a new way of testing for Cadasil has been found. No longer will people have to have their blood drawn. A simple swabing of ones mouth or collecting of siliva for DNA sampling can give the same results that blood screening can give with the same accuracy.

 

In the Readers Digest issue for November 2008, page 96. A dose of Cocoa; Eating and drinking foods high in cocoa flavanols inproves blood flow to the brain and may help prevent strokes and demntia. In a study of 34 adults ages 59 to 83, scientists from Harvrd Medical School and Brigham and Womens Hospitals found that those given a flavanol rich drinks twice a day for one to two weeks had a significant increase in brain flow. The compounds may help the brain relax, improving circulation, while there are labeling standards for flavanol yet, food companies are marketing 'Healthier" choices in dark chocolate and cocoa. A small bit couldn't hurt, and may just help. Yummy, Chocolate.  

 

In the Readers Digest isssue for December 2008, page 96. A University of Kansas study found that patients who were fit had four times less brain shrinkage (meaning cell death)than those who were out of shape. The benifits of exersize, including changes in  growth factors and incressed blood vessels and blood flow, may prevent  brain cells from dying. 

 

Concord grapes, blueberries, red wine: They all get that deep, rich color from polyphenols—compounds that reduce heart disease risk and may also protect against Alzheimer's disease, according to the new research. Polyphenols help keep blood vessels and arteries flexible and healthy. "What's good for your coronary arteries is also good for your brain's blood vessels," says Robert Krikorian, Ph.D., director of the Cognitive Disorders Center at the University of Cincinnati. Preliminary animal studies suggest that adding dark grapes to your diet may improve brain function. What's more, in a recent human study, researchers found that eating one or more cups of blueberries every day may improve communication between brain cells, enhancing your memory.

Tea up" to stop strokes

Drinkng lots of black or green tea may lower your risk of stroke, according to the research presented at the American

Stroke Association's International Stroke Conference in San Diego, California., earlier this year. Experts say antioxidents and other substances in these teas appear to reverse the prcess of strokes, and help ward off strokes. A study review of 195,000 adults found that people who drank 3 or more cups of tea daily had a 21% lower risk of strokes compared to people who drank one cup or less. 

 

 

alan
Registered: 04/20/09
Posts: 1

    09/22/09 at 06:02 PM
#8

stephaine
you can be diognosed with a mri. that is how i was diognosed cadisal
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