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bsundara
Registered: 04/13/09
Posts: 13

    08/22/09 at 05:20 PM
#1

Hello folks ,

I rarely come to this forum,
I wanted to pen down and keep everyone posted about my condition. I was diagnosed with cadasil in march 2009.

Its been exactly 6 months and i report to say that I am doing perfectly fine
- cross my fingers, and pray to the Almighty.

- I have had a few headaches, and was told by a neurologist that it is due to recovering from stroke and supposedly not related to cadasil
- I am sleeping well
- My exercising is continuing regularly, I am into aerobics, biking and weights.
I bike around 30 miles a week.
- diet is normal
- I am back at work full time for the past 3 months.
- my alertness and sharpness and mental agility is fine.

- Pranayam and Yoga is continuing without stoppage. After pranayam, I feel very relaxed and zero stress.

SO so far so good. Whenever condition worsens it is inevitable and I will take it as it comes, My view is that one has to die any day, this is the final thing that is written for all of us. SO while I am alive, I do not want to think about the bad things and want to keep my thoughts positive.

That said, does any one take
- gingko Biloba?
- Fish oil capsules?
- any one use turmeric either in cooking or eating it raw?

I want to find out, if people are into alternate treatments - Ayurveda etc.

Thanks

lavci1
Registered: 06/01/09
Posts: 5

    10/08/09 at 05:46 PM
#2

Hi,
 First off I hope all is well with you. Ok now for my question, I believe you stated the you had a skin biopsy done at the hospital at one point, can I ask you why? Did you have any lesions or marks on your skin?

Take care.
lavci1
Registered: 06/01/09
Posts: 5

    10/13/09 at 08:27 AM
#3

Hello, first off I hope your doing well.
I believe you mentioned in a previous post that you had a skin biopsy taken at the hospital, can I ask why? Did you have some sort of lesions or something?

Thanks!
Take care.
bsundara
Registered: 04/13/09
Posts: 13

    10/15/09 at 07:17 AM
#4

No lesions. No such indication at all

However, Skin Biopsy was done to find out Cadasil.
The result of skin biopsy was negative.


Results of a Skin Biposy are faster and is used to detect Cadasil. However a blood test is a foolproof method. Genetic testing of blood takes longer time.

Thanks

lavci1
Registered: 06/01/09
Posts: 5

    10/15/09 at 07:40 AM
#5

sorry for the double post. I thought the first one didn't work.

Janet
Registered: 09/16/09
Posts: 3

    11/02/09 at 11:56 PM
#6

I have been taking gingko biloba, Korean ginseng, fish oil (actually Omegas 3,6,9) and other supplements. Have taken tumeric but am not now -- no real reason, I just ran out and didn't buy more. Don't know that any of these make a difference. 

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